Epping Forest MP Dr Neil Hudson recently attended a cross-party event in Westminster to learn more about Postural Orthostatic Tachycardia Syndrome (PoTS). Dr Hudson met with representatives from PoTS UK, a charity dedicated to supporting individuals affected by this complex autonomic nervous system disorder.
PoTS is characterised by an abnormal increase in heart rate upon standing, alongside symptoms such as light-headedness, dizziness, fatigue and brain fog. The condition affects approximately 1 in 700 people, with a higher prevalence among girls and younger women.
Despite its significant impact on patients' lives, PoTS remains under-recognised in the medical community. Subsequently, the diagnostic process is often lengthy and can take, on average, seven years from onset to diagnosis. Currently, there are no established care pathways or national guidelines for PoTS in the UK.
The event aimed to raise awareness about the challenges faced by individuals living with PoTS and to advocate for improved support and recognition. PoTS UK representatives shared insights into their work, including providing evidence-based education, support for patients, and efforts to empower individuals to self-manage their condition.
Following the event, Dr Neil Hudson, MP for Epping Forest said:
“I am grateful for the opportunity to learn more about Postural Orthostatic Tachycardia Syndrome and the vital work being done by PoTS UK.
“It's clear that we need to increase awareness of this debilitating condition among both healthcare professionals and the general public.
“I am committed to supporting efforts to improve diagnosis times, establish clear care pathways, and ensure that those affected by PoTS receive the support they need.”
To learn more about PoTS, please go to: https://www.potsuk.org/
